I have enjoyed the information sharing and support. There seems to be a wide variety of health issues but D is the most discouraging thing people seem to be dealing with and pain.
It's good to find somewhere with all the information I needed in one place. It helped me enormously when I was struggling to get the help I needed from my doctor.
There is a wealth of information on your site and I found it particularly helpful to read the stories from people who I know went through the same thing as me.
I've found the site very informative and it helped me to better understand my condition just after I'd been diagnosed.
Site design by LJKuk
Bile Salt Malabsorption affects everyone differently. These stories, written by members of the BSM Facebook group, show how they came to have the condition, how it developed, how it affects them now and how they cope with it on a daily basis.
In 2008 I was admitted to hospital with an acutely infected gallbladder however after 12 days of IV antibiotics, where there was little improvement, I was advised that the only thing they could do was remove it but not to worry because I’d be able to function perfectly normally without it.
Within days of my gallbladder being removed I started to have bouts of diarrhoea followed by bouts of constipation and lots of intestinal rumbling and gurgling which was loud enough for other people to hear.
I noticed that after I’d been to the toilet I never felt finished and I’d have to go back time and again often with little or nothing happening. The diarrhoea was always accompanied by intense pain in my abdomen and started immediately after I’d been eating. There was generally no warning and I’d have to run to the toilet, often getting there with seconds to spare.
I put up with this for a few months before I went to see my GP who referred me to the gastroenterology department of my local hospital. She’d told me they’d probably do a colonoscopy but instead, without a consultation, I was sent an appointment for a sigmoidoscopy. Afterwards a letter was sent to my GP saying there was nothing found, which at the time seemed like a relief however my symptoms continued to get worse. The constipation disappeared completely and I was left with 10-
In late 2013 I said to my GP that I was reaching the end of my tether and the IBS was seriously impacting on my life to the point where I was swallowing Loperamide like they were smarties and she agreed to refer me back to the hospital where I at last got to meet a real gastroenterologist! She listened to my symptoms and said that she couldn’t be sure but there might be a condition causing them but she couldn’t remember too much about it and also there was a test I could have but she couldn’t remember its name however she’d look into it and write to me with further details. A couple of weeks later I got an appointment for a SehCAT test which would show if I had a condition called Bile Acid Malabsorption. The test came back positive and after nearly six years of struggling along on industrial quantities of Loperamide I was prescribed Colestyramine (Questran Light) and it has changed my life, literally overnight. I no longer take Loperamide although I still take it with me wherever I go, more for confidence than anything else I suppose, and I can now go about a normal life without worrying about where the toilets are or whether I should eat anything. I don’t get any pains or instant urges and absolutely no diarrhoea at all.
Questran is not the nicest thing in the world to swallow but I can tolerate it mixed with apple juice and as long as it works I’ll happily take it for the rest of my life.