I have enjoyed the information sharing and support. There seems to be a wide variety of health issues but D is the most discouraging thing people seem to be dealing with and pain.
It's good to find somewhere with all the information I needed in one place. It helped me enormously when I was struggling to get the help I needed from my doctor.
There is a wealth of information on your site and I found it particularly helpful to read the stories from people who I know went through the same thing as me.
I've found the site very informative and it helped me to better understand my condition just after I'd been diagnosed.
Site design by LJKuk
Bile Salt Malabsorption affects everyone differently. These stories, written by members of the BSM Facebook group, show how they came to have the condition, how it developed, how it affects them now and how they cope with it on a daily basis.
I had my gallbladder removed about 3 years ago. I was fine for about 2 months, then one night I ate my dinner like normal and bam , the diarrhoea started. I thought I had a stomach bug but it never went away.
After 2 weeks I went to my GP. I felt so ill and I’d lost about 28lbs in 3 weeks. I felt sick, awful and had stomach pains from trying to hold it in when I needed to go. My GP said it sounded like IBS. I'd never heard of IBS so I looked it up and put it down to that.
I had a sigmoidoscopy and it was clear so that was it, I was left with IBS. My doctor said I had to put up with it so I did the best I could by taking loads of imodium.
I went back to see my GP after 3 months saying it was no better. It was a different doctor at my surgery and he said that I have post cholecystectomy syndrome. He said that since it happened after gallbladder surgery he was sure of it. It can happen to 25% and I just happened to be one of them. So I went home and looked up this condition. I knew they weren't going to help me so I did all the research myself. I found there was a test for this and a medication called Questran. I asked for Questran and he also gave me cyclizine for the nausea. I didn't see any relief with the Questran so I thought maybe it is just IBS. I travelled an hour to Manchester for the SeHCAT test and when I went back a week later the journey was so awful! I waited for my results and when I went back for them he said my test was 5.2% so there was lots of bile in my colon. He said anything under 15% meant it’s positive and mine was very low. I was so happy that I knew what was wrong with me at last and it wasn't all in my head like I'd been told before. He told me to calm down, stop worrying and the diarrhoea will go away -
I try and live everyday as best I can. Most days when I'm going out I won't eat for fear of diarrhoea. I have also gained a lot of weight when I'm meant to be losing it, so the doctors say anyway -