I have enjoyed the information sharing and support. There seems to be a wide variety of health issues but D is the most discouraging thing people seem to be dealing with and pain.
It's good to find somewhere with all the information I needed in one place. It helped me enormously when I was struggling to get the help I needed from my doctor.
There is a wealth of information on your site and I found it particularly helpful to read the stories from people who I know went through the same thing as me.
I've found the site very informative and it helped me to better understand my condition just after I'd been diagnosed.
Site design by LJKuk
Bile Salt Malabsorption affects everyone differently. These stories, written by members of the BSM Facebook group, show how they came to have the condition, how it developed, how it affects them now and how they cope with it on a daily basis.
I'd been getting severe abdo pain on and off for about four months before going to see my GP. Just thought it'd be IBS.....I'm a nurse, I work shifts, loads of us have tummy problems..... Got a bit of a telling off from GP and was firmly told next time I had the pain I needed to go to A+E.
In August 2012 did as I was told and ended up being admitted with pancreatitis due to gallstones. "We need to take your gallbladder out otherwise you could get pancreatitis again and next time it could kill you. You'll be fine afterwards" they said
My gallbladder removed October 2012 and the diarrhoea started pretty much straight away. Gave it 6 months but the weight was still dropping of me, the diarrhoea was getting worse and the abdo pain was still there so GP referred me to gastro.
The summer of 2013 was the worst for me, constant diarrhoea and pain, wouldn't eat anything before I went to work just so I didn't have an "accident" on the way there, always worried about where the nearest toilet was. I was exhausted all the time, I had no social life, if I wasn't at work I was asleep. When I got diagnosed with BSM after a SeCHAT scan I actually felt relieved that it wasn't just "all in my head"!!!
I've been taking colesevelam for almost a year now, things aren't perfect. Still get abdo pain, nausea and sometimes diarrhoea and seem to be in a constant battle with the hospital but things have definitely improved for me......I have some of my life back, my GP is working hard with me to get better symptom control and more importantly he listens.